1st COVID vaccination done

Posted on 28th February 2021

After avoiding visiting doctor’s surgeries for years, it wasn’t possible to avoid the need for this, part one of two, vaccinations. For days I’d resisted the temptation to postpone the appointment and anxiety was massive, especially after badges declaring ‘I have OCD’ didn’t arrive to display prominently for the nurse administering the jab to see, and hopefully understand.

I was surprised to receive a text as early as I did, inviting me to book an appointment via my phone, and once done I decided not to think about it too much until the day before, but that was so much easier said than done. I rehearsed in my head how it would play out, what was best to wear, and what needed to be decontaminated when I got home.

On arrival there were two (security?) stops with people checking identity followed by a squirt of hand sanitizer with a leaflet handed to me, that I didn’t want to take as it complicated how to hold that whilst imagining how to expose my arm but not let my clothes touch anything. I entering the room (which was clearly ordinarily a doctors consulting room) to which I said to the nurse “Hello, I’m sorry but I’m highly anxious as I have severe contamination OCD and haven’t been in this kind of environment for many years”. She had a facemask on but her meager response and eyes told me she didn’t know what to do with that statement (my confession).

She said “Well shut the door and sit down” and seemed as nervous as me when I shut the door, not using the handle, but the edge of the door with my little finger and said “Is it possible to stand please?” She said “Eer yes” unconvincingly and continued to ask the mandatory questions. I felt awkward, and know from my past Emotional Intelligence training that standing over someone sitting is very bad body language on my part (but clearly not intentional).

So I tried to ingratiate myself by saying “I’ve been so tempted to postpone this appointment but managed to resist it” but she merely responded factually “well it would need to be done eventually” – not wrong, but not warm or friendly. After questions were finished she stood to do the jab so I said “Is it possible for you to wear fresh gloves and show me the needle is in a sealed blister pack please … oh I see you are taking it out of a packet, but could you put on clean gloves please” to which she answered “No these were clean” – presumably she put them on before I entered the room but I rehearsed in my head that they should be put on at the point they start the treatment not for the pc/desk administration.

I was so flustered, and embarrassed, by now that I can’t remember her adding the vaccine to the syringe, and worried about it later that night at home, but have to trust that she did her job as trained perfectly, and that I hadn’t distracted her to the point of making an error. Fortunately she didn’t touch my skin as she administered the pin prick and mopped up a small amount of blood (that dreaded word) on a clean cotton wool ball.

The hand on the arm wasn’t used during my vaccination, which was a bonus

I quickly dropped my sleeve and rearranged my clothing, noting that I’d been successful in not letting my long coat touch the surgery floor, or anything else for that matter. She passed me a small card with the name of the vaccine, said I’d be notified for my second vaccine, and to move to the waiting room for 15 minutes to ensure I didn’t have a reaction.

With difficultly I opened the door, which was slightly ajar, with my little finger and said “Thank you, I’m sorry for being painful.” I can’t remember how she responded, it wasn’t memorable, probably, “that’s ok” or even “don’t worry” and I headed to the next and final stage of this horrible experience, the embarrassment of standing in a waiting room of ten seated people, with surplus soft/cushion seats available. On TV I’ve seen seats being sanitized as each person moves forward, but these chairs could not be cleaned – my nightmare – spongy cloth seats at a doctors surgery – it shouldn’t be allowed, surely plastic or leather to allow cleaning should be made mandatory in the 21st century, where people have infectious illnesses, body fluid leakage, and now COVID-19 virus.

So many chairs are available that can be cleaned

The people sitting on them appeared totally relaxed, but I of all people know that appearances can be deceptive when I’m conducting my swan portrayal – appearing calm on the surface whilst flapping crazily below the surface. They all gave me a discreet glance, wondering why I was standing when there were seats available, but luckily no one said the obvious. Why I stood there looking like a fish out of water for the full 15 minutes baffles me now, but I suppose I wanted to conform and follow instructions, but it would have been more comfortable and less embarrassing to wait in the car just feet away outside for those 15 minutes.

I was so relieved to walk out of the building, cover my hands in sanitizer, and head straight home to strip off all my clothes/facemask into the washing machine and wash my arm thoroughly with hot water and soap, before a bath to wash away any possible microbe of contamination. All done, mission ‘vaccine 1’ successful until the second vaccine. The only evidence being a tiny mark at the top of my arm and tenderness in the surrounding area of the arm for about 30 hours.

Family and friends knew that I was going to find this vaccination process incredibly stressful so texts started arriving asking how it went, to which I responded briefly with “Good news; it is done and wasn’t as bad as I thought it could have been so won’t need to worry so much for the second jab, but the bad news is I don’t think the nurse I was allocated knew what to do with the statement “I am extremely anxious with severe contamination OCD.”

I should point out that I am grateful to be given the vaccine when there are people desperate, and more worthy, to receive it. That said, I hope the above account might help someone else with similar anxieties cope with the unknown, but not really optional, medical process. I hoped that being honest and confessing my disability to the nurse, she would have taken just seconds of her day to say something reassuring, or to acknowledge the stress I was clearly displaying with a wobbly voice – facemasks only inhibit reading mouth expressions, not eyes and voice.

So the above experience continues to motivate me to improve awareness of how difficult everyday activities can be when living with my type of, contamination, OCD. Unfortunately it hasn’t allayed my fears so I continue to worry that the older I’m getting I’ll need to be hospitalised and have to encounter a mixture of understanding/lack of understanding 24 hours a day rather than this ten minute procedure.

Ding ding – “Round 2” in 10-12 weeks time but at least I’ll know what to expect, will be able to make a clear unambiguous statement by wearing my ‘I have OCD’ badges, and keep my fingers crossed that it won’t need to be an annual visit to top-up efficiency or difference in COVID strains.

Visuals depicting OCD

Posted on 17th February 2021

‘A picture paints a thousand words’ as the saying goes, therefore today I’ve been exploring which visual best suits my life with OCD. Is it a bully whispering in my ear, if so what does this bully look like? Do I have a bird sitting on my shoulder chirping nuisance OCD thoughts in my ear to prevent normal behaviour? I entered keywords into Word ClipArt for inspiration without much joy, so moved onto 123rf.com for images to buy.

Entering ‘OCD’ in the search box resulted in 2,174 images – I duly went through half of them (clearly obsessive) but still struggled to bond with any photographs/illustrations. So I entered ‘Mental Disorder’ in the search box – this resulted in 36,344 images! I was on a determined mission, but even I couldn’t look through more than a few hundred, but again nothing really resonated with me.

My partner, who is an illustrator, came up with the image above to represent me living in COVID times, but I’m afraid I wasn’t too impressed that it reflected the reoccurring nuisance thoughts. To be honest, at first glance I thought the dangerous red virus droplets were poppies falling on the umbrella!

So I’ve given him a more specific brief of: brain synapses/neuro transmitters, ping-pong thoughts going back and forward in perpetual motion like a Newton’s cradle, and thought bubbles with scary words in them like contamination, blood, germs, dirt, poo. These things are how I think of my OCD.

I look forward to his next illustration that I’ll add in my next post.

Covid precautions, OCD and taps

Posted on 10th January 2021

It’s been such a long time since I last posted on here – I should have made more New Year Resolutions, with allocation of time to this blog being an important one. In my defense, time just flies by with huge ‘To Do’ lists every day leading up to Christmas, and then a chaotic New Year with family illnesses (that is my excuse over).

In all seriousness, living in a world plaqued with Covid and all the necessary precautions, and my OCD behaviours of decades on top, maximum concentration and effort is needed to be vigilant with ‘hands, masks and space’, and that is just in my home!

Due to work and sick family members my partner is “exposed” to life outside of my protective bubble, namely home, so he has to wear a mask around me as much as possible and wherever possible keep a distance if he isn’t wearing a mask (i.e. whilst eating and drinking), and as for washing his hands?!

Life was unbearable for him living with me ‘on the hand-washing front’ prior to Covid contamination, but now everything he touches that enters the house with a shiny surface in the last three days means it potentially has the virus lurking, ready to be digested by him or me, and we have all seen the awful consequences on the 24×7 news bulletins.

I used to wash my hands far too often prior to 2020, but now the thoroughness, duration and frequency has become an occupation. They say you need to spend a minimum of 20 seconds (singing Happy Birthday twice) but that never feels sufficient for me – three times 20 seconds and then after drying it might not “feel right” so start the process all over again. As anxiety is extremely high, tap checking for no drips takes much longer than usual, it goes like this:

After turning off both hot and cold taps, stare to check for no drips – off, they are definitely turned off.
With my hand under the turned off hot tap count to random number, say 4, meaning a countdown of 4 seconds – yes there are no drips, the hot tap is off.
Then do the same with the cold tap – pick a number, perhaps 2 for the cold tap, meaning 2 seconds – yes there are no drips, the cold tap is off.
Maybe I’ll just check that hot tap again (if would cost more if it was dripping), another number, maybe 6 (I prefer even rather than odd numbers and it can’t be 13), meaning 6 seconds of checking passes by.
Right I’ll dry me hands now. Oh, but one more check of both taps before leaving the bathroom. Yes both taps are off.
I’m leaving the bathroom now and start to descend the stairs, when that horrible OCD bully creeps into my head and whispers menacingly “But what if the tap isn’t turned off and the plug is in the sink and it overflows, and water damages the important technology devices on the table downstairs, directly positioned under the bathroom, what if that happens and you destroy all the files with years of work in them, imagine hours of dripping taps, how much water would that be and what destruction and damage would that cause, how much would that cost to put right?” I try to ignore these worrying thoughts, with worse-case-scenarios, but no, the bully wins again.
I need to go back into the bathroom and do a couple more checks with my hand under both taps.
Yes both taps are off and are not dripping, so I exit the bathroom, but then … I smell my hands to ensure they smell clean with a residue of highly perfumed soap but oh dear, I can’t smell soap, and up pops OCD bully “But what if your hands are not sufficiently clean, and you touch something that could contaminate a loved one, imagine if you made them sick, best you go and wash your hands again?” If time is tight, this worry has to be ignored but occasionally the bully wins.

This process is for one hand wash, so you can work out how much of my day, and night, is wasted when I visit the bathroom. No wonder I feel like I’m always busy, but have very little productivity to show for my waking hours.

It is so annoying that as most people are now washing their hands so frequently to prevent Covid contamination, that some thoughtless people say “I’m so OCD”. No, OCD is more than a quick rinse of soap and water. OCD plagues your thought processes. OCD doesn’t trust what your eyes can see – my eyes can see there are no drips and the tap is off, but oh no, the OCD bully won’t let me trust the sense of sight, it wants the sense of touch involved too, not just once but many times over.

OCD worry is exhausting — ocd exposed worry

Should shielding end today officially?

Posted on 1st August 20201st August 2020

NO it should not end. Officially it has, I suspect for Government cost purposes, but there are still a huge number of people contracting Covid-19 and 2,000,000 people in the UK are still highly vulnerable – the vulnerability of sick people is increasing not decreasing – operations and treatments have been placed on hold in hospitals. Admittedly the chances of coming into contact with a person carrying Covid-19 has reduced per 100,000, and masks are being worn in most public places (thankfully at last) but the worry doesn’t end abruptly on a date dictated by the UK Government. With this in mind, how do I cope with my OCD?

Well I’m still shielding all these months on, for my elderly/sick mother’s sake, and my health might not cope with the aggressive and varied ways the virus attacks the body. I’ve not been out of the house, not even for shopping or prescriptions, except to walk to visit my mother who hasn’t left her house since the first week of March 2020 and has no plans to leave in the foreseeable future. However as my family around me are now experiencing a more normal life, it is adding pressure on me to manage or let go of the rigid, and thoroughly clean, behaviours I’ve added to my original OCD demands.

It is such hard work, I’m starting to buckle, and entertaining the thought of it not being possible to have other people near me whilst trying to apply shielding constraints – these close/few people to me have the right to live as normal as is possible. It is now dawning on me that you either live totally on your own, have shopping dropped at your doorstep, you wash it thoroughly with soap and water, and have no one visit unless they are 2 metres from you and don’t touch anything, and don’t use your toilet, or …. you aren’t shielding and you are then purely trying to minimise risks. As the Government says “Stay Alert” and “Control the virus” – five little words, but blimey it is so hard to put into practice in busy daily living!

I am one of the many people who are too scared to start to integrate into the outside world. So many people are feeling nervous and anxious of any contact or exposure, whilst trying to function as they did in January/February of this year. It is only human to worry about the risk of contracting the virus, especially as it is in every news bulletin, but I have to add on the complication of my 30 years ingrained OCD rationales of contamination.

Coronavirus cleaning rituals — Coronavirus Covid-19 cleaning

I do feel vindicated that the sense I apply behind my contamination OCD worries are now being encountered by the general public all over the world. It is now recognised that hugging, toilets, unclean hands, touching your face, handles, salt and pepper, menus, hairdressers towels, and the close proximity of strangers etc (the list is huge) carries the risk of being contaminated – admittedly, ordinarily with diseases less fatal than Covid-19 though. I have had friends and family say that they understand my OCD weirdness a little better now, but it is no consolation.

Whilst it will take millions, no billions, of people a long time to find a “new normal” living with Coronavirus Covid-19, it is going to take me a hell of a long time longer – if at all. It feels like I am climbing Mount Everest when I used to climb Scarfell Pike.

I try to inject some humour into these posts, but today it is really hard to find a happy note to end on, except to say at least in the UK the number of deaths (from Covid-19 only but not other diseases) is currently reducing for now, but boy oh boy what a horrid few months it has been since February!

Germs OCD frustration — Always be alert for Coronavirus Covid-19

Social distancing and extra hand washing

Posted on 8th April 20208th April 2020

How the world is changing so fast and confirming so many of my long standing ‘contamination OCD’ worries and behaviours. It seems weird that so many people are now having to think in the same way that I’ve been thinking for decades.

I find it reassuring that people now understand my mentality of continual hand washing to aid protection from virus and bacteria contamination – with this Coronavirus COVID-19 being potentially fatal it takes importance to a whole new level!

I also find it reassuring that people are now keeping two metres away – I used to want my personal space, and didn’t like it being invaded, but now it is imperative in most interactions, be it social, shopping, business or even relatives.

I feel guilty, but glad, that two years ago I worried about having a cough so ordered a box of medical face masks to prevent me passing any germs to my family – these masks are in short supply now but was readily available on Amazon at the time I ordered them. I do hope that now the world sees the importance of face masks, they will start to produce attractive, non-scary, ones – maybe with flowers for women and funky patterns for men?

The other thing I find strange is the recommendation to wear rubber gloves wherever possible, because although it is perfectly understandable for the medical and caring professions to use them on patients and their procedures, after contact with anything contaminated they are as dangerous as unwashed hands – they still enable contaminates to be passed around to other surfaces, your face, your mobile phone etc. If a delivery man is wearing gloves whilst holding your parcel, the parcel might still have the Coronavirus on the packaging so you still need to wash your hands after handling it. I hope the general public don’t see rubber gloves as added protection?

As you can see from my photograph, I have three levels of protective plastic/rubber gloves, depending on the severity and dirtiness of the job, and I attempt not to waste plastic so re-use my gloves wherever possible – you can also see how my bleaching has destroyed the paintwork of my table!

I use disposable/flimsy gloves to do extremely dirty jobs like emptying my household rubbish into the outside bin because by touching the bin handle I would need to scrub my (OCD) hands, but by taking the plastic glove off I can just wash ordinarily (well OCD ordinary).

Whilst on this subject though, my hand washing is off the scale!! Having ‘Contamination OCD’ means that I wash my hands as many times as necessary for them to ‘feel right and clean’ in normal conditions this tends to more than once, but with Coronavirus living this can now mean I do them three or four times for 20 seconds each wash.

Having previously stocked up enough on hand washing liquid for my OCD living, it is now a big daily worry that I have sufficient, as it seems in scarce supply in the supermarkets right now – the experts say that it doesn’t have to be anti-bacterial liquid soap as this is a virus but merely the OCD in my mentality means “I’d rather be safe than sorry”.

Why isn’t more effort (and therefore probably expense) being put into making basics like liquid hand soap and hand sanitizer easily available in our ‘essential shops’? The UK Government insists we all wash our hands for 20 seconds thoroughly at every opportunity, which is very sensible, but I can only imagine how much soap is needed for a large family confined to the house and not expected to travel too far or too frequently for their shopping – I already do this but today I read that everyone should wash their hands before and during preparing food, and then again before eating food.

Even before Coronavirus recommendations I would wash my hands three or four times whilst making a sandwich and I WILL HAVE TO travel as far as necessary to stock up on liquid soap I’m afraid.

Safe Sofa Zone

Posted on 14th May 201514th May 2015

Does anyone else with this frustrating OCD condition have certain clothes for their ‘safe zones’? My favourite comfy clothes are saved for my Safe-Sofa-Zone – an oasis in the house that no one else (not even my gorgeous grand-children) can go near. This is my living area to relax in and the OCD bully has a job to reach my thoughts.

The cushions and throw on my safe-sofa are welcoming, cheerfully bright, and only ever been marooned on my white leather sofa. If, and it’s a big if, they should drape or fall off the sofa, they are immediately swooped up into the washing machine, and then dried on my own clothes-dryer, in my bedroom. No one touches these items, and I always wash my hands before touching them, or sitting on my sofa. There is one other Safe-Zone, and that is my white leather bedroom chair, next to my desk where I write this blog.

This obviously presents problems when I have guests in the living room because I have to guard my sofa to minimise stress and cleaning/washing. However it is so worth it! I can sit on my sofa with my safe-items at hand on a small side-table – they have all been scrubbed clean, such as my iPad, note book, pen, box of tissues, hand sanitizer gel, and hidden behind my large cushion, a packet of anti-bacterial wipes (just in case of an emergency contamination such as someone touching me or my sofa and it’s clean contents).

The above ritual is complicated by the fact I can only wear my safe-sofa-clothes in this area, so housework has to be done in another set of clothes, and then going outdoors is yet another set of clothes, with bedtime meaning a further set of clothes (usually pjs). This can even play with my mind, let alone the people around me.

So often my family look baffled when I nip upstairs to change my clothes after making them a drink upon arrival, but if we’re to have a relaxing chat on sofas in the living room …. well it’s all explained above. However, if we then move into the dining room to sit and eat, or decide to visit the shops or pub, it will mean another change of clothes (or two).

Family (but not friends) know of my indoor/outdoor clothes rule, and bless my children for abiding by this rule since they were small (I think it started when my son began school and wore a uniform), but over the years a third category has infiltrated my ritual – indoor AND safe-sofa clothes.

It is a bizarre world I have manufactured for myself but I do obviously blame the OCD bully and envy the simplicity of normal changes of clothes e.g. when they NEED washing. Another thing I am jealous of is when people enter their home after a long day, put the kettle on, and then flop down to enjoy a cuppa whilst kicking off their shoes. My routine is enter, take off outdoor shoes, wash hands, upstairs to change clothes, wash hands, make cuppa, wash hands, then flop down.

Spiralling thoughts

Posted on 24th March 201524th March 2015

I think too much time on your hands can be unhelpful when trying to keep OCD thoughts at bay, here is an example of this. Italic text shows my peck-peck OCD thoughts.

Feeling cold whilst sitting on my sofa, I pulled on a cardigan from my wardrobe and returned to the sofa. Simple you would think, but no, far from it. As I sat there feeling the benefit of the extra warmth from the cardigan I started to doubt whether it was freshly washed when added to my wardrobe (I’ll do a separate post about the complications of my wardrobe rituals). I smelt the arms, which smelt of washing powder, but that wasn’t enough because the peck-peck of my contamination OCD thoughts were not through with me. I tried hard to ignore the thoughts, and distract myself knowing that the warmth was improving and I mustn’t let the OCD win.

I tried but failed to beat it, so I took the cardigan off to see if there was any creases that would indicate it had been worn previously – no, the opposite. There was signs that it was washed and put away without being ironed, as this cardigan was for casual wear around the house, so no creases on the inside of the elbow, or creases on the back to indicate I’d sat in it.

So I put the cardigan back on and tried hard to relax and ignore the next peck-peck of OCD thoughts. This time they played hard-ball. When was the last time I wore it? Could it have been in a public place where germs were transferred to the back or the arms? Did I wear it on a public chair where someone else’s waistband had touched the chair, and that person had been to a dirty toilet and passed germs from the toilet to the public chair that I sat on? I was now rubbing the germs I’d picked up off the chair onto the cushion behind my back, the leather of the sofa I was sitting on, and the throw on my lap? I pictured the scenario of later resting my head on the contaminated cushion, dirtying my hair, that would then contaminate my pillow on my bed. That is an ‘Ultimate No-No’.

Stop thinking like this I kept telling myself, relax. I tried thinking about something more interesting and pleasant, but the peck-peck of germs being on my cardigan and transferring to my “safe” environment would not go away.

I know from the CBT workbooks that I’ve read, that I need to ride out this storm and last as long as possible before caving in to the OCD thoughts. Remind myself the cardigan smells and looks perfectly clean from the section of the wardrobe that I add ONLY clean clothes to. Try to relax.

After five minutes more, the cardigan came off and was put into the washing machine. The leather sofa was sprayed with Dettox and rubbed clean (a frequent activity that does no harm). Then the cushion I was leaning on was sprayed with Dettox, rubbed furiously with kitchen roll, and moved to dry out – I managed not to put that into the washing machine because it was “out of site and out of mind” to dry. Luckily the throw had not been contaminated because I took the cardigan off in time, but I headed into the wardrobe and pulled out enough clothes to make up a load for the washing machine. I feel sure the clothes were already clean, but I didn’t want to re-enact the above situation in the future. My rationale is get rid of any doubt and reassure myself, but I was weak.

So in conclusion, because I wasn’t busy and was trying to relax, I ended up being busy, and OCD won (this time)!